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marie-M
#1 Posted : Thursday, May 12, 2011 10:18:07 AM Quote
Rank: Member

Groups: Registered

Joined: 5/11/2011
Posts: 19
Location: taunton
Good Morning everyone, my name is Marie, 47, and i was dianosed in 2003. no signs or symptons before except getting lymes diease in 2000. it went undiagnosed for about 8 weeks, and was given just a course of antibiotics. we think this started it all of. i was working as a staff nurse in minehead hospital when i first got it and had nearly a year off, went back to work under protected hours but only lasted 3 days. in the end i was offered redeployment in outpatients, sat behind a desk for 15 hours a week. lasted about 18months and the right knee then decieded to swell, at first the drs thought a DVT was present then a bakers cyst. it was the knee joint its self and i had a replacement 3 years ago. that worked really well, i did have to fight to get it done as i was only 44, but the rest of me is still stiff and sore. the nhs eventually got fed up with my sick leave and i was offered ill health retirement in 2009. i have acccepted the part where i have limited movement and cannot do what i used to or want to. Smile
Rose-B
#2 Posted : Thursday, May 12, 2011 10:26:33 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 4/20/2010
Posts: 1,749
Location: Somerset


Hello Marie,

Met you at our NRAS meeting on Tuesday, very nice to meet you. Glad you have found this forum
and I hope you find in useful and encouraging.

I am Rose, 57 From Somerset, married to Mike, 2 children aged 30 and 28, my Son lives at home
with me still. I have 1 grand daughter.

Diagnosed late 2008 and still not sorted on medication , been on mtx, sulph, leflun all failed and
have been accepted for Humira, but due to ill health this has been sat in my fridge ready to start
asap.

I was a Manager in Insurance and was off sick last year for 7 months and I have tried to get back
to full time working, but have not been able, so now work 12 hours pw (due in in an hour) this is
split into 2 days. Working well with this , but 12 hours is still 12 hours too much if I am honest
but I do think keeping my 'hand' in the work place gives me something else to talk about rather
than just 'me'.

Welcome, must go to work now.


Rose BigGrin

crazychick
#3 Posted : Thursday, May 12, 2011 1:41:37 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/6/2009
Posts: 177
Hello Marie

I'm glad you have joined the forum. You will gets lots of support on here. My name is Shirley, i'm married with 3 children and 3 Grandchildren. I was diagnosed just over 2 years ago, aged 47. I'm currently on MTX and humira and have failed on 4 other DMARD's. Which drugs are you taking?

Love Shirley x
sheila_G
#4 Posted : Thursday, May 12, 2011 2:01:15 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/28/2011
Posts: 956
Location: North Preston
Hi Marie

Glad you have joined the forum. I am Sheila 9 yrs diagnosed RA. I am finishing work in 6 weeks. I am self employed and don't get my state pension until Jan 2012 so a bit worried about money but feel I can no longer continue as fatigue is extreem. Fortunately hubby has a good job and is younger than me so we will be ok.

Sheila x
Kathleen_C
#5 Posted : Thursday, May 12, 2011 4:10:09 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 1,689
Location: Durham
Hi Marie,

Welcome to the forum - you will soon be glad you found us, I`m sure!

I`m Kathleen, live up north in Durham. I`m 60, and was diagnosed in Jan 2006 - the same day as my oldest grandson`s 1st birthday. I`m currently taking humira by injection.

Take care,

Kathleen C x

Sue10
#6 Posted : Thursday, May 12, 2011 5:47:46 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 6/18/2010
Posts: 351
Location: Herne Bay Kent
Hi Marie

Welcome to the forum which I am sure you will find very helpful. It is great to have somewhere to ask any questions and know that people understand where you are coming from.

My name is Sue and I have been diagnosed for 5 years. I am 56 married with 3 children and 5 grandchildren. I am pleased to say that my RA is under control at the moment since beginning Enbrel.

Look forward to hearing more from you

Sue
BigGrin
dorat
#7 Posted : Thursday, May 12, 2011 6:06:21 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 3,157
Location: Huddersfield
Hi Marie,

Welcome to the forum, you'll get lots of support and advice on here.
I am 61, married with one daughter, 22, and I have had RA for 10 years.
Looking forward to getting to know you.

Doreen xx
suzanne_p
#8 Posted : Thursday, May 12, 2011 7:59:11 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 8/25/2010
Posts: 1,289
Location: Buckinghamshire
hi Marie,

welcome aboard.

you will find lots of advice and information on here and there will always be someone to help.

i'm 58 diagnosed a year ago but not under control yet, waiting to start on Humira.

keep posting,

Suzanne x
smith-j
#9 Posted : Thursday, May 12, 2011 8:12:54 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 714
Hi Marie

Welcome to the forum but sorry you had to have RA to find us. I am 48 and was diagnosed two years ago. This forum has been my lifeline with information and support. No question is too silly so keep posting.

Jackie
xx
ceri44
#10 Posted : Friday, May 13, 2011 9:50:40 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 9/5/2010
Posts: 364
Location: mid glamorgan
Welcome from me, Im Ceri 43 diagnosed 2 years ago, this site is great and theres always someone to help and advise keep posting x
Debs
#11 Posted : Friday, May 13, 2011 10:53:25 AM Quote
Rank: Advanced Member

Groups: Registered

Joined: 9/9/2010
Posts: 77
Location: Hampshire
Hi Marie
Welcome Smile from me too. My name is Deborah aged 46 and I was diagnosed last September. I think this site is wonderful. It's great to know that there are others who understand exactly how we are feeling. Take care Debs Smile x
marie-M
#12 Posted : Friday, May 13, 2011 1:19:15 PM Quote
Rank: Member

Groups: Registered

Joined: 5/11/2011
Posts: 19
Location: taunton
morning all, thanks for all the replies, its very comforting to know so many of us RA people are together in this. xxxxBigGrin
BarbieGirl
#13 Posted : Friday, May 13, 2011 6:09:40 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 1,110
Location: London
Hi Marie, welcome to the forum. I am Barbara, 57 and diagnosed two years ago, about to go on anti-tnf. Everyone here is very friendly and will be happy to help with advice etc. I would be lost without all of my NRAS friends, thats for sure!! I do still work three days a week, but do find it very hard going as not controlled yet, I childmind, so quite physical. I hope you will join is with discussions, take care Smile
BARBARA
LynW
#14 Posted : Saturday, May 14, 2011 1:25:41 AM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
Hi Marie

Welcome to the forum. A great place to be for support and information; lots of folk, lots of knowledge and a wealth of tried and tested experiences! Glad you have found us and NRAS!

I'm Lyn, married to Mike, we have four children (well I call them children but perhaps it's time to stop!), Abby 23, Ian and Jake 17, and Louis 16. All four in various stages of education! We live in Thornton Cleveleys in north west Lancashire. I was diagnosed with RA 23 years ago and have since run the gamut of medication and had lots of surgical procedures along the way. Currently on Enbrel, Leflunomide, Prednisolone and Naproxen, and a wagon load of pain killers! Struggling at the moment after knee surgery last summer, a major flare in Cyprus of all places, two lots of knee aspirations and joint injections in 7 weeks, a depo injection that didn't work and basically RA that has not been controlled for the last 12 months! But heyho... no-one said life with RA would be easy!

Look forward to getting to know you,

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

Lorna-A
#15 Posted : Sunday, May 15, 2011 11:51:01 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/8/2010
Posts: 914

Hi Marie,

Welcome to our forum, we have all been where you are now and wear the tee shirt. Smile Life is not easy with RA and being you can't see the pain it makes things so much harder.

I am Lorna I have had RA for 3.5 years diagnosed at 48, I really was in a bad state then. I am married with 3 lovely daughters whom I am so proud of. In 5 weeks I ended up completely bed ridden and unable to do very much at all. But with the help of the triple therapy I keep well now. Keep in there and try to stay positive it can improve given time.

The forum is always the place to be when needing to chat to someone, we all understand, the pain, the frustration, the fatigue, the hopelessness you can feel and the isolation. I had never heard of RA until I was diagnosed, I could not come on here to begin with I was so scared of what lay in front of me. I kept a diary and I found it helped to see when I started to get better.

Thinking about you, take care.

Lorna x Smile

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